A young four-year-old girl from Ware has been rewarded with an Epilepsy Star award by a charity for her incredible bravery and quick-thinking to save her mum suffering from a seizure. Daisy Scott, 4, from Ware, realised something was not quite right when her mother Michelle suffered a seizure.
Daisy was a quick thinker and used her home’s Alexa smart speaker to call her father in a crucial moment. Daisy’s dad Kevin explained what Daisy did when she realised something was not quite right.
Kevin explained: “We have an Alexa smart speaker and in an emergency, Daisy knows to ask Alexa to ‘call Daddy’ and it will connect to my mobile so I can talk to her directly.
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“Once when I was at work, Daisy called me through Alexa and I could tell that Michelle wasn’t well from what Daisy told me. She was so calm and explained that Mummy was on the floor and was shaking.
“I asked her to move any objects that may hurt Mummy and told her that Grandpa would come to the house soon and so she would need to unlock the door. Daisy went to unlock the front door calmly and waited for Grandpa to arrive.”
Kevin nominated Daisy for an Epilepsy Star for her tremendous bravery during the scary incident. Kevin also stated that after their second child Rosie was born, Michelle suffered a seizure. Brave Daisy stayed with her baby sister to ensure she “didn’t get upset” by rocking her in her basket and looked after her.
Michelle was diagnosed with epilepsy in 2016, two years before Daisy was born. She was initially diagnosed with Multiple Sclerosis in late-2011 and was able to manage it “very well”.
However, Michelle suffered a seizure just four months before her wedding day which led her to be diagnosed with epilepsy. Before they tried for a baby, the Ware couple had to adjust to all the MS and and epilepsy medication to ensure the safety of their baby.
When Daisy turned one and started nursery, Michelle suffered her first daytime seizure after returning to work part-time for the NHS. Kevin said: “Unfortunately, returning to work alongside the emotions of our little girl starting nursery was too much and Michelle had her first daytime seizure.
“This was a huge shock for all the family. Michelle needed hospital treatment to break her from the seizure and she nearly missed Daisy’s first birthday party. After this seizure, Michelle started to have regular appointments with the epilepsy specialists at Addenbrookes and a medication plan was put in place.”
Michelle sadly suffered another daytime seizure two years later when they went camping, which caused her to be hospitalised. In hospital, the specialists identified that Michelle’s seizures were caused by fatigue, stress and anxiety.
When Michelle was pregnant with their second child, she started having bi-monthly seizures. Kevin said: “As you can imagine, this was an incredibly stressful time because of the fear that the seizures may harm the baby.
“Michelle’s anti-seizure medication was increased which naturally worried us too. Even though Michelle suffered a lot during this time, our healthy girl, Rosie, was born.”
Michelle and Kevin want more people to understand the impact of epilepsy on the whole family and want to raise more awareness about the condition. They said: “Daisy has seen her fair share and that is the reality of the condition. The more people know about life with epilepsy, the better families will be able to cope.
“We’ve bought some children’s books about epilepsy to help explain the condition to Daisy and so she knows what to look out for. Daisy was three years old the first time she saw her mum have a seizure and so we spent a lot of time explaining why Mummy sometimes has to go to the hospital to make her better.”
The family has been supported by a strong group of friends and family as well as being helped by Epilepsy Action. The couple has been helped by the registered charity, including the Local Talk and Support groups which has been a “welcome relief” to allow them to speak to families who have gone through a similar experience as them.
Michelle and Kevin are immensely proud of Daisy for her bravery. They said: “She never runs away from situations which even a lot of adults would have, and always stays with Mummy and Rosie until there is someone to help. She has saved Mummy’s life on more than one occasion. We are so proud of her for being such a strong and brave little girl. Daisy, we love you to the stars and back.”
Rebekah Smith, Deputy Chief Executive at Epilepsy Action, said: “Daisy has shown real bravery when faced with what can feel like a scary situation and it is clear that her actions have had a huge, positive impact on the family. We’re over the moon to be able to recognise Daisy by giving her this Epilepsy Star award of which she is really deserving.”
Epilepsy affects around one in every 100 people in the UK and 79 people are diagnosed every day. Epilepsy Action is committed to improving the lives of people with epilepsy, by campaigning for better services and raising awareness of the condition.
They provide a national network of support groups, with expert advice available on its freephone helpline 0808 800 5050. For more information about Epilepsy Action’s Star Awards, or to nominate someone, visit their website here.